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Measuring family-centered care in the NICU

In partnership with families, CPQCC has embarked on an initiative to measure family-centered care in the NICU. Our work on disparities in the NICU, supported by the National Institutes of Health (NIH), revealed gaps in family centered care. Addressing these gaps through measurement and feedback will ensure that NICU families, including marginalized families are better supported in caring for their infant.


We engaged a national panel of experts and family representatives in a Delphi experiment and identified key measures of family centered care. These measures were designed to be extracted primarily from the electronic health record to reduce measurement burden. We are currently pilot testing these measures and we welcome your participation in this effort.


Measures being considered for this pilot test are:


· Days from NICU admission to first skin-to-skin care

· Days from NICU admission to first social worker contact

· Hours from birth to priming with oral colostrum.


Please let us know if you would like to participate in this pilot.

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